Clinic Day #17

October 7, 2009

This evening as I stroked Tanner’s head and tried to comfort her until the Zofran and Oxycodone kicked in, I looked down to see two bruises on her thighs where the Peg shots were administered and was reminded of all she has been through in this seemingly endless week.

Those long-dreaded Peg shots turned out to be just one of the many trials this week that have shed some light on why this stage of treatment is called Delayed Intensification. First, there was the pneumonia-ish illness, three days in the hospital, the Peg shots, a breathing treatment that burned her mouth and upset her terribly, the steroids and, finally, back to the clinic today for Vincristine and the nauseating Doxirubicin.

She seemed very tired this morning before going to the Clinic and had a little crying jag about having to take a bath and having to go to Clinic. She wanted me to go with her, which of course I couldn’t, but John’s Mom went with them, so she got to have her E. with her. Clinic went well and she seemed to be feeling pretty well when she got home with her steroid-inspired McDonald’s Happy Meal. But, shortly after eating, she began feeling bad and fell asleep for several hours. When she woke she felt terrible, but we were able to get her nausea under control with medication, so we did better than last time overall. She has figured out that it’s the red chemo that makes her so sick and asked why she had to take something that made her feel so bad. When I explained that we only had to take red chemo one more time, she said looked at me with her pale little face pinched in pain and said she could stand one more time… amazing.

Surprisingly, the steroids have been fairly anticlimactic. She has really handled them well, with minimal mood swings or erratic behavior. The food obsession has kicked in and she wants cheese, grease, fat and more cheese. She literally begged me for McDonald’s hash browns this morning and I found myself at Kroger at 6:30 buying Velveeta for nachos! We finished the last steroid pill this morning and are off them for the next week…. Hurray!

So, now is the really hard part… knowing that we will do it all again next week… and the week after, and the week after. This is a marathon for sure, and there is little time to regroup before the next big hill is upon you.

My poor husband wins the MVP award this week. He has been Mom, Dad, Employee and Nurse this week and has kept his sense of humor to boot. There was a point today where he looked a little like if someone asked him for one more thing little pieces of him might start falling off of him… an ear, an arm, a finger. He just looked too stretched and I felt terrible that when everything was so awful, instead of pulling my weight, I had been just another burden this week. Bronchitis is hard for me to kick and even though I feel better, I still had to lie down for the majority of the afternoon in order to stop coughing.

And, Most Valuable New Recruit goes to John’s mom who rescued us this week, for sure. She has a job and a very busy life and dropped everything in a moment’s notice to help us. I, literally, could not have done it without her. I was down for the count on Tuesday and could not have taken care of Jake that day. Thanks to her, I was able to get the rest I needed.

And, last but not least, to my friends who showed up at my door with food (you know who you are)… what can I say? We are being carried through this journey on the shoulders of those we love and who, thankfully, love us back.

Week one of DI down, seven more to go. Don’t leave us now… we’ll be needing you…

Love,
Beth

Coming Home!

October 7, 2009

Yay! Tanner is coming home this afternoon. Can’t wait to get my hands on that girl! Jake and I have missed her and Daddy terribly.

She does have to go back tomorrow for clinic and chemo, which sucks, but we’ll cross that bridge when we come to it.

Had the Peg shots last night and John said they went as well as he could have hoped, considering they are so painful. The Atavan was a gift and we will be using it for these types of procedures from now on.

She is still hoarse and coughing quite a bit, but the docs feel like her lungs sound good and she is full of very powerful antibiotics.

Nuff said.

Beth

Hospital Update

Tanner showing off her dinosaur oxygen mask!!  She's smiling under there.

Tanner showing off her dinosaur oxygen mask!! She's smiling under there.

October 6, 2009 Tanner is feeling much better and will likely get to go home tomorrow. They were going to send her home today, but apparently needed to adjust one of the antibiotics they are giving her to make sure she is getting enough to be effective. They give that particular antibiotic by weight then measure it in the blood. Tanner’s body processes it quickly and she didn’t have enough in her bloodstream to be effective. So, one more day. Doctors say her lungs sound better and she has no fever.

She misses her Mommy, though. It is excrutiating for her to be there and not be able to be holding her hand or kissing her little face. Kids want their mommies when they are sick, and it is killing me to be stuck here, sick myself. John is awesome though and she had a visit today from the children’s minister at our church. I hate that he is having to handle this totally by himself… I feel useless.

They will do the dreaded Peg shots this afternoon. Hope they are quick and that the Ativan helps her handle them more easily.

Love,
Beth

In the Hospital

October 4, 2009
As we feared, Tanner woke this morning with a fever and her cough had worsened. We didn’t wait for her appointment for the Peg Shots, but took her right in instead. I also woke this morning worse for wear, so John took her since I can’t expose the kids on that unit to my germs.

They found the beginning stages of pneumonia, so they are keeping her at least overnight and giving her IV antibiotics to help her recover. She escaped the Peg shots today… they haven’t said when they will give them, but we did learn that the Atavan works wonders for her anxiety. We gave it to her not knowing if they would give her the shots or not. They were going to give them to her initially, and even went so far as to put numbing cream on her legs and she handled it with great humor. But, once her oxygen level started dropping due to the pneumonia, they decided not to give them today. Thank God. All she needs is to be nauseated and throwing up on top of this illness.

I went to the doctor, too, and have bronchitis, so I cannot go to the hospital tonight. It is killing me not to be there.

John’s Mom is coming in the morning to help, so we’re all good. It will just be Jakey and me tonight.

I’ll keep you posted if we find out anything else.

Love,
Beth

We’ll See What Happens Tomorrow

October 4, 2009 We’re just sick and tired… or at least I am. Tanner woke up Friday morning still pretty sick and slept for several hours mid-morning while my good friend Shelley took Jake to McDonalds with her little boy to play. By afternoon, though, Tanner was feeling a little better and by evening, it seemed like the worst of the nausea was finally at bay. Saturday morning she woke up feeling good and John took she and Jake bike riding in the morning. In the afternoon, we played on the school playground next to our neighborhood and I was impressed by how far she ran across the field and how much energy she seemed to have. But, she and I both began to cough Saturday afternoon. By Saturday night, both of us were hoarse and coughing quite a bit.

So, all day today, no one got out of their jammies. We played on computers, watched TV, painted our faces and generally took it easy. Tanner had a low fever in the 99s this afternoon and we started getting ourselves ready for a trip to the ER. But, her temperature had returned to normal by bedtime. So, we’ll keep an eye on her and hope for the best.

I can tell you that I had no energy at all today and felt pretty bad. So, I’m assuming she felt the same, but you would never know it. I kept telling John I was going to be pretty embarrassed if a kid with leukemia on tons of chemo kicked a cold that I couldn’t kick, but it may be true! She definitely had more energy than I did today.

We’ve been waiting for the steroids to rear their ugly head, but so far, so good. She’s had three full days and I suspect by tomorrow, we’ll start seeing some effect. For now, though, she’s been very good humored and isn’t eating a ton either.

So, tomorrow is a dreaded day… Peg shot day. I will be interested to see if they even give her the shots considering she obviously has some kind of virus. Even though I dread the shots, I just want to get them over with. I just get sick every time I think of it. It’s one of those moments when I feel like I am lying to her by not telling her about them, and even though I know it makes it easier for, I feel rotten about it. I just will never forget her looking at me and asking, “Why did you let them do that to me?” the last time we had these shots. Hopefully, the anti-anxiety drug we will give her beforehand will make it easier.

I’m not really sure how the chemo given through these shots will affect her. The side effects listed in my childhood leukemia book are numerous, but she was so sick from the leukemia last time she had these shots, you couldn’t tell what came from what. She goes back again on Thursday to receive Vincristine and the Doxirubicin that made her so sick last week. Needless to say, I think this is going to be a very tough month.
So, we need some positive mojo, here… prayers, well wishes, good karma in the universe… all these things. Hopefully, no fever by morning and the Peg shots go as well as possible.

Love,
Beth

Tanner Page… My Hero

IMG_1231October 2, 2009 Tonight, as we crossed the Shelby Street Bridge, I looked behind me and in front of me to see thousands of illuminated red balloons, marching along at a determined pace, sweeping along with them the occasional bobbing white balloon for blood cancer survivors and too many gold balloons marking the loss of a loved one. Among these red balloons carried by those who love and support someone currently fighting blood cancer or someone who has survived and beaten it, somewhere around the middle of the pack, was a white balloon attached to a red wagon carrying a pale, but determined six-year-old propped up on pillows and wrapped in a pink High School Musical blanket. That child was my daughter and I was prouder of her in that moment than I have ever been before.

When I left the house at 5:30 pm to make my way to LP Field and meet up with Team Tanner, she was in my bed having managed to choke down a slice of bread and some applesauce. It was the first food she had eaten since the night before and she looked weak and sick, but was firm on the fact that she and John would meet me at the walk a little later. On my way downtown, John called to say she had thrown up 3 or 4 times and that they would not be coming. My heart sank… she wanted this so badly, had worked so hard to raise this money. While we were still on the phone, John says, “Wait, she’s up and says she’s coming!” We talked about keeping her home, but decided to let her make the call and she and John said they would be on their way shortly.

Tanner arrived, packed comfortably in her wagon, with a tired smile on her face, but happy. She said she felt better and joked and posed for pictures with the team. She never got out of the wagon except to go the bathroom and, even then, I carried her the few steps to and from the port-a-potty, but she never complained, and even perked up enough to, hilariously, eat a barbecue sandwich while being pulled through downtown Nashville by her Dad. She made it on sheer grit, a childlike desire for fun, and a maturity I had never seen her show on this level.

The walk was a beautiful event. The weather was perfect, downtown Nashville sparkled and there was an impressive turnout. I thought I would be a weepy mess, but I only cried once, when we found the luminary that Keith Harper created for her, lit along the side of the road with many others. It said, “Tanner Page, My Hero.” Indeed.IMG_1228

Other than that, it was a mostly joyous event that was too uplifting to make me cry. Even those who were walking in memorial of a loved seemed to be celebrating a life lived well, if not ended well.

Our team was wonderful and perfect, a great mix of our friends, some co-workers, some former co-workers, some church members, and some just old friends. I am glad to have shared this magical night with them… it was special for all of us, I think. Thanks to Robin, Kim, Beth, Glenn, Paula, Rebecca K and Rebecca L, Anna Lynn, Abbey, Amy, Keith, Leslie, Pat, Bobby, Lauren and Larry for walking with us. And, many thanks to everyone who donated; we raised more than $7,500. Larry wins the prize for having travelled the furthest; he hails from New Jersey and had flown in the night before from Maine, just to walk with us. Rebecca K wins the trooper award for walking nearly two miles and standing on her feet for an hour beforehand while 9 months pregnant (I am not worthy…). We are blessed many times over to have such wonderful friends who are carrying us through like the red balloons carried the whites.

We carried adorable signs that Robin made, with pictures of Tanner and slogans like “We love Tanner,” and “Team Tanner Rocks.” I think Tanner realized, for the first time, that she is not alone. That there are lots of people with cancer, that there are tons of people who love her, and that she is never alone in this journey, although she probably feels like it sometimes.

On the way home, I looked into the rearview mirror to see my little girl, asleep with the chain of glow bracelets Anna Lynn had brought her looped over her ears and dangling down, ridiculously. She had joked only minutes before that they looked like earrings, then asked if she could have her nighttime meds when we got home because she was starting to feel sick again. She looked beautiful and strong, even though she was pale and physically weak, and I marveled at her determination.

This is my daughter. And she is fighting cancer tooth and nail.

Love,
Beth

Clinic Day #15

October 1, 2009 After a pretty smooth clinic day, we’re still on the fence as to whether Tanner will be able to attend the Light the Night Walk tonight. She passed the first two hurdles… good counts and no transfusion necessary… but has yet to pass the third… feeling good.

This new chemo, Doxorubicin, she received today has really made her nauseated and she feels pretty lousy. I just gave her a dose of anti-nausea medicine 4 hours early, but don’t know if that will do the trick or not. She’s in my bedroom for a nap and I am hoping she will wake up feeling better. Bless her heart, she told everyone at the hospital today that she was going tonight and is so excited. She told me not fifteen minutes ago that she still wanted to go even if she didn’t feel good. She said we could pull her in the wagon.

Agggghhhhhh. This stinking chemo!

The good news is that her hemoglobin pulled itself back up to an acceptable level without having to have the transfusion. We did have to hold her down again today to get her anesthesia…. She was terrified. The doctor is going to give her some versed next time beforehand to lessen her anxiety. We’re also going to give her some anti-anxiety meds before she has her peg shots on Monday. The Peg shots are two shots given simultaneously in the thighs that are very painful. Tanner is terrified of shots and we won’t tell her until right before they give them to her which means we can’t do any of the numbing cream or ice to help with the pain. Needless to say, I dread Monday.

So far, Delayed Intensification is living up to its name.

Hopefully, she’ll see some of you tonight…

Love,
Beth