June 4, 2010
Tanner’s just not feeling very well. It’s like this most recent round of chemo is affecting her more than it usually does. Through all the first 6 months of horrible chemo she received, she threw up only twice, now she has thrown up twice in one week and has needed anti-nausea meds every day. Weird.
She’s also been really hot, which I assume is caused by the steroids. She will complain about not being able to cool off and will actually feel really hot to the touch, but has no fever. Like hot flashes, I guess.
I did a little research on the Leukemia and Lymphoma Society discussion boards. I go there especially when I have a side effect I want to know more about. Doctors are only so helpful about side effects. They’re more concerned (as they should be) with the effectiveness of all these drugs and whether they’re actually killing the leukemia. Mommas are the ones who worry about side effects and the LLS discussion boards are where they talk about them. Turns out it’s not uncommon for kids to begin having more side effects as maintenance goes along. The theory is that the toxicity of the chemo over the long-term just builds up in their little bodies and they become too tired to fight them off. Many mothers of boys (who do an extra year of chemo) talked about how sick and fatigued their boys were the third year of chemo. So sad.
All this feeling bad hasn’t really stopped us from having some fun, though. Yesterday, after waking up sick, Tanner rebounded and, within an hour, we went to the pool. Kids are amazing. We haven’t played outside as much as usual; the heat was too much for her. But, the steroids are wearing off and we’ll be back to scootering and biking in no time, I’m sure.
Wednesday, we went to see our favorite singer, Roger Day, at the Spring Hill library. It was, as always, lots of fun. Tanner and Jake got a seat up front and Roger worked Tanner’s name into a couple of songs, which tickled her. They got signed t-shirts and we went home with a new copy of a CD we misplaced during the move. We’ve been singing, “As a matter of fact, Jack, I like Yaks! We like YAKS!” in the car ever since.
When we were in line waiting to get into the room where Roger was going to perform, Tanner started talking to a Mom in front of us. She said, “I have cancer, well leukemia, and Roger Day came to our house and had a concert with my friends.” The look on that’s Mom’s face was priceless. Tanner was so matter-of-fact about it the woman never said a thing to her about having cancer, she just looked startled for a moment and kept talking. Lol
Today, more pool time and then we need to go sing Happy Birthday to Aunt Kim. Happy birthday Kimmie! Next week, Tanner has theater camp all week. I’m hoping it will be the perfect outlet for my little drama queen.