September 30, 2009 Tomorrow will be both a blessing and a curse. It is the long-awaited day of the Light the Night walk for Leukemia and Lymphoma Society, a joyous day we have been really looking forward to. But, it is also the first day of the Delayed Intensification treatment phase, a day we have been dreading.
It will be an odd day, but I think it’s awesome that it will end on the up note with the walk at 7:30 at LP Field.
We are still hopeful that Tanner will be able to come, but there are certainly a lot of hurdles to jump. First, her counts will have to be high enough for the doctor to clear her (we’re pretty confident about this as her counts have been high and she did not have chemo last week). Second, if her hemoglobin has gone down and she has to have a transfusion tomorrow, we will be at clinic for so long, we probably wouldn’t make it. Third, she has to feel like coming (and this is where we may find our sticking point).
Tanner’s first day of Delayed Intensification starts with a bang. The whole goal of this phase of treatment is to ferret out and destroy any insidious little leukemia cells that may be hiding, and for that job, they bring in the heavy artillery. Tomorrow, Tanner will have a lumbar puncture with and injection of methotrexate, an IV infusion of Vincristine and an IV infusion of Doxorubicin, a chemo she has never taken. In addition, she starts the dreaded oral steroid, dexamethasone. We’re hoping with a nap in the afternoon, we can bring the wagon and pull her when she gets tired. She really wants to come. So, we’ll see.
We are so honored by those who have chosen to donate to Tanner’s team. It floors us that we have had to raise our goal not once, but 3 times, due to the overwhelming generosity of friends, family and some we have never met. We have currently raised more than $7,200. I cannot find the right words to thank people enough or to explain what this has meant to us… to have something like this to look forward to.
Our friend, Rebecca Little, has a way with words and best summed up the way this event has made us feel. She said we must feel like the guy on the cell phone commercials with the huge network behind him. Only our network is one of love and support! What a perfect analogy! Every donation, every person signed up to walk, every wish for success, has wrapped us in love and support… and tomorrow night we will literally be surrounded by it. I so hope that Tanner can come. She needs to feel what John and I feel, and I think tomorrow night is the kind of night even a six-year-old can understand.
Thank you is not the right word… I just can’t find one that is adequate.
Love,
Beth