Independence Day

July 5, 2009 If you told John and I a week ago that we could have had the kind of holiday weekend we have had, we never would have believed you. Our daughter is back! Instead of having to convince her to get off the couch, we have to convince her to take a nap.

What did we do this weekend? A better question would be what didn’t we do? Saturday morning we went swimming at the Whitler’s. If you didn’t see Tanner fall on the way to the pool or labor down the stairs, you would have never know there was anything wrong. In the water, she is her old swimming self. Flips under water, swimming to the bottom for torpedoes Jake kept throwing into the pool, paddling across the deep end. She looked like any other kid. It was a moment of pure joy for John and I to watch her in an arena where she could match up to other kids.

Having said that, she was exhausted afterwards. I had to wake her 3 hours into a nap so we could go to a 4th of July cookout at the Adkins’ across the street. The original plan was to go over at 5:30 or so, then come home for a little while for a rest and then go back for fireworks. Apparently, that was not Tanner’s plan. We stayed straight through until almost 9 pm. They ate, played inside and outside, caught fireflies, ate freezer pops and did everything a kid should do at a cookout. Tanner was right there with the other kids. Sure she couldn’t jump or run to catch a firefly and she fell several times, but she hung in there and had a great time. Again, though, when she got tired, it was instant. She suddenly said, “Mom, can we go home now? Right now?” Kendall carried her across the street to the house. John and Jake had gone home earlier when Jake discovered that he did NOT like fireworks. “I not like that BOOM!” he said, with his little hands over his ears.

Sunday was the best day of all. We hung around and took it easy all morning… because… Roger Day was coming to our house for a private concert!!! If you don’t know who Roger Day is and you have kids (or grandkids), you should. He’s awesome. He’s a singer/songwriter that the kids love and the parents can actually enjoy as well. His lyrics are funny and clever, but the music is solid and his concerts are tons of fun. We’ve seen him a number of times and own all his Cds and his video. He plays all over the country, but lives right here in Franklin. You can check him out at www.rogerday.com. A million thanks to him for taking time out of his Sunday to help a little girl who can’t go to his concert this Thursday at Brentwood library (shameless plug). We always go to see him when he plays in town, but can’t anymore because of Tanner’s immune system. After he left, he actually drove all the way home and came back with a signed T-shirt for Tanner that he had forgotten to bring. Nice guy or what?

We invited a few friends over to sing and dance with us and had the best time. All the kids were dancing and doing all the special moves to “Mosquito Burrito” and “Roly Poly.” A physical therapist couldn’t have worked Tanner out any better. Roger played for nearly an hour and serenaded Tanner with his cool Happy Birthday song. She was thrilled. We’ll try to post some video to the site, if we can, to show what fun the kids had. The funniest part was when Roger came through the door and Tanner saw him. She walked to him, intending to throw her arms around his waist in a hug, but fell right before she got to him. Miraculously, she played it off as if she had meant to do it and threw her arms around his calves instead, saying, “You’re Awesome!” She never missed a beat.

After Roger left, Tanner went to Corinne’s house for Ms. Ashley’s famous homemade pizza. Ashley called at 6:30 to say that Tanner was going to fall asleep in her plate if I didn’t come get her. While she was there a tooth fell out, too. When I went to get her, she asked if I would carry her home and when I picked her up, she whispered in my ear, “Can we go straight to bed?” Which is exactly what we did. Exhausted, but happy.

In short, this weekend was better than we could have ever hoped for. I’m not so naïve as to think that there aren’t hard times ahead, but I’m just trying to live in this moment and not worry about what next week will be like. We’ll hang on to the memory of this weekend for a long time and bring it out when we need it to remind us of what is at the end of this long journey. It was the first time that I felt like we ruled the leukemia instead of it ruling us. We got the best of it and declared our independence from it, even if temporarily.

Happy Independence Day! Hope yours was even half what ours was.

Love,
Beth

8 thoughts on “Independence Day

  1. Yipee! So glad to hear you had a great weekend and Tanner felt like really playing! What a blessing and like you said, something to hold on to and cherish as you go forward down this road. Will talk to you soon! Love you all!

  2. HEY, TANNER!
    WE ARE WISHING YOU A VERY VERY VERY HAPPY BIRTHDAY!!
    WE LOVE YOU VERY VERY MUCH AND SEND YOU HUGS!!
    E. AND PAPA

  3. WOW!!! I don’t think any of us could top that weekend.

    So glad that everyone had a good time – most especially that sweet little Tanner – and just in time for her birthday. I hope she is feeling just as strong and happy for her big day. I put a “Happy Birthday” card in the mail today with an enclosed photo of Obi and I wishing her a special day.

    Beth, I received a card today from a church member that I want to share with you. This is just one example of many that I have received,

    “Dear Debbie, I have just become acquainted with your great niece’s health problems. Your family is in my prayers. How thankful I am that your all know “The Giver of all good gifts”, “The God of Miracles”, and the promise of His peace. Love Phyllis.”

    How grateful I am knowing that you and John are firmly planted in His love and that it is His strength, encouragement, peace, and even joy- coming so very often from His people – that will see you all through this most trying of times.

    Love you all so very much. I intend to call you sometime this week and talk about a day next week that I can visit and maybe spend the night – thinking that you and John might like a dinner out. You will have to decide if you think this will work or not – I leave that to you and John.

  4. What great news for such a joyous week-end and for a family that deserves it so much! It is nice to hear that Tanner felt “independence” for this special holiday. I think of you daily and keep you in my prayers!
    Happy Birthday to Tanner this week!
    Thinking of you~ Sissie

  5. Pingback: Tanner Time » Blog Archive » Bye, Bye DI !!!

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